The unmet emotional, care/support, and informational needs of adult survivors of pediatric malignancies.

ABSTRACT:

Purpose

This study describes the prevalence and predisposing factors for potentially modifiable unmet emotional, care/support, and information needs among adult survivors of childhood malignancies.

Methods

A randomly selected/stratified sample of participants in the Childhood Cancer Survivor Study (CCSS) responded to the CCSS-Needs Assessment Questionnaire (CCSS-NAQ) (n = 1189; mean [SD] current age, 39.7 [7.7], range = 26-61 years; 60.9 % women; mean [SD] years since diagnosis, 31.6 [4.7]). Survivors self-reported demographic information, health concerns, and needs; diagnosis/treatment data were obtained from medical records. Adjusted proportional risk ratios (prevalence ratios, PRs) were used to evaluate 77 separate needs.

Results

Fifty-four percent of survivors rep

SUBMITTER: Cox CL 

PROVIDER: S-EPMC5341614 | biostudies-literature | 2016 Aug

REPOSITORIES: biostudies-literature