Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents' Web Information Needs.

ABSTRACT:

Background

Parents of children with rare conditions increasingly use the Internet to source information on their child's condition. This study reports on part of a larger study whose overall aim was to identify the Internet use by parents when seeking information on their child's rare condition, with the specific purpose of using the findings to aid in the development of a website specifically designed to meet the parents' needs. It presents findings on why these parents use the Internet, the information and support content they source, and the impact these resources have on their capacity to care for and manage their child's condition.

Objective

To (1) ascertain parents' general Internet usage patterns, (2) identify the nature of the information parents most frequently sear

SUBMITTER: Nicholl H 

PROVIDER: S-EPMC5350458 | biostudies-literature | 2017 Feb

REPOSITORIES: biostudies-literature