Consensus-Driven Development of a Terminology for Biobanking, the Duke Experience.

ABSTRACT: Biobanking at Duke University has existed for decades and has grown over time in silos and based on specialized needs, as is true with most biomedical research centers. These silos developed informatics systems to support their own individual requirements, with no regard for semantic or syntactic interoperability. Duke undertook an initiative to implement an enterprise-wide biobanking information system to serve its many diverse biobanking entities. A significant part of this initiative was the development of a common terminology for use in the commercial software platform. Common terminology provides the foundation for interoperability across biobanks for data and information sharing. We engaged experts in research, informatics, and biobanking through a consensus-driven process to agree o

SUBMITTER: Ellis H 

PROVIDER: S-EPMC5397220 | biostudies-literature | 2017 Apr

REPOSITORIES: biostudies-literature