Results of a Qualitative Study to Develop a Patient Reported Outcome Measure for Patients with 4 Subtypes of Soft Tissue Sarcoma.

ABSTRACT:

Objective

The objective of this research was to develop a disease-specific symptom inventory for soft tissue sarcoma.

Methods

Literature review and clinical expert and patient interviews were conducted to determine disease-specific symptoms important to patients with one of the four STS subtypes. Clinical experts identified the most relevant STS symptom items from the item pool developed from literature review. Concept elicitation interviews were conducted with patients to elicit their STS symptom experiences followed by a completion of the draft symptom list via web survey. A cognitive interview was conducted on the comprehension and importance of the symptom items.

Results

Eighty-three symptom items were compiled and discussed with three clinical experts who identif

SUBMITTER: Skalicky AM 

PROVIDER: S-EPMC5446879 | biostudies-literature | 2017

REPOSITORIES: biostudies-literature