Health related quality of life in patients with idiopathic pulmonary fibrosis in clinical practice: insights-IPF registry.

ABSTRACT:

Background

The INSIGHTS-IPF registry provides one of the largest data sets of clinical data and self-reported patient related outcomes including health related quality of life (QoL) on patients with idiopathic pulmonary fibrosis (IPF). We aimed to describe associations of various QoL instruments between each other and with patient characteristics at baseline.

Methods

Six hundred twenty-three IPF patients with available QoL data (St George's Respiratory Questionnaire SGRQ, UCSD Shortness-of-Breath Questionnaire SoB, EuroQol visual analogue scale and index EQ-5D, Well-being Index WHO-5) were analysed. Mean age was 69.6 ± 8.7 years, 77% were males, mean disease duration 2.0 ± 3.3 years, FVC pred was 67.5 ± 17.8%, DL_CO pred 35.6 ± 17%.

Results

Mean points were

SUBMITTER: Kreuter M 

PROVIDER: S-EPMC5512739 | biostudies-literature | 2017 Jul

REPOSITORIES: biostudies-literature