Why aren't people with young onset dementia and their supporters using formal services? Results from the INSPIRED study.

ABSTRACT:

Background/aims

Despite reporting high levels of burden, supporters of people with young onset dementia (YOD) underuse formal community services. Previous quantitative studies in YOD are of limited utility in guiding service design because they did not consider important contextual barriers to service use. The aim of this study was to identify all relevant barriers and describe the service features considered most important to improving uptake by people with YOD and their supporters.

Methods

Eighty-six people with consensus-confirmed YOD (mean onset age 55.3 years) and/or their primary supporter participated in quantitative interviews, and 50 also participated in one of seven qualitative focus groups. Interview participants reported levels of community service use and reason

SUBMITTER: Cations M 

PROVIDER: S-EPMC5517136 | biostudies-literature | 2017

REPOSITORIES: biostudies-literature