'We knew it was a totally at random thing': parents' experiences of being part of a neonatal trial.

ABSTRACT:

Background

Studies exploring parents' trial experiences generally relate to their understanding of the consent process and the development of researcher strategies to facilitate recruitment and retention. The aim was to better understand parents' experience of being part of a trial at the time and their perceptions of trial participation in retrospect.

Methods

Data were collected in a number of ways: from recorded discussions between parents and clinicians about the MRI or ultrasound, in open-text responses to questionnaires and in qualitative interviews at 1 and 2 years after participation. Thematic analysis was undertaken using NVivo10.

Results

Key themes identified were 'deciding to take part', with subthemes associated with 'benefitting self', 'benefitting others'

SUBMITTER: Harvey M 

PROVIDER: S-EPMC5539623 | biostudies-literature | 2017 Aug

REPOSITORIES: biostudies-literature