Impact of non-welfare interests on willingness to donate to biobanks: an experimental survey.

ABSTRACT: The ethical debate surrounding biobanks has focused on protecting donors' welfare and privacy. However, little attention has been given to the ethical significance of donor interests that go beyond privacy and welfare (non-welfare interests [NWIs]), such as their concerns about the moral or religious implications of researchers using their donated samples. Using an experimental survey design with 1,276 participants recruited via Amazon Mechanical Turk (MTurk), we studied the potential impact of eight NWI scenarios on people's attitudes toward research studies being performed on samples donated to biobanks by assessing willingness to donate, attitudes toward disclosure of NWIs, impact of timing and format of disclosure (number of NWIs disclosed on a page), and participant factors associated

SUBMITTER: Gornick MC 

PROVIDER: S-EPMC5558242 | biostudies-literature | 2014 Oct

REPOSITORIES: biostudies-literature