Understanding polycystic ovary syndrome from the patient perspective: a concept elicitation patient interview study.

ABSTRACT:

Background

The aim of this study was to explore the need for a new disease-specific patient reported outcome (PRO) measure for use in clinical trials of drugs designed to target the underlying causes of polycystic ovary syndrome (PCOS), and in the process contribute to our understanding of the symptoms and impacts that define the patient experience with PCOS.

Methods

Semi-structured interviews were conducted in 20 women diagnosed with PCOS according to the Rotterdam criteria who had not menstruated in the previous month. The relative importance of PCOS symptoms and impact concepts to patients was determined by analyzing the frequency of their expression in the interview transcripts. These insights were compared to clinicians' perceptions of PCOS.

Results

Pain- and dis

SUBMITTER: Martin ML 

PROVIDER: S-EPMC5562990 | biostudies-literature | 2017 Aug

REPOSITORIES: biostudies-literature