Participating in an International Stereotactic Radiotherapy Patient Registry: The Establishment of Data Collection Pathways.

ABSTRACT: Aim To describe data collection pathways and practical challenges experienced by an academic comprehensive cancer centre aiming to record clinical data for patients being treated with a novel radiotherapy treatment modality. Methods Various options to capture data from all patients treated with the CyberKnife Robotic Radiosurgery System at Sir Charles Gairdner Hospital (SCGH) in Western Australia were explored. An international multicenter web-based secure database established and maintained by the Radiosurgery Society the RSSearch® Patient Registry was selected. Data were collected and entered over four contiguous phases, with either opt-in or opt-out consent and the completion of Patient Reported Outcome questionnaires for specific sub-groups. Results Between April 2014 and June 2016, 46

SUBMITTER: Yahya A 

PROVIDER: S-EPMC5574631 | biostudies-literature | 2017 Jun

REPOSITORIES: biostudies-literature