Patients' and parents' views regarding supportive care in childhood cancer.

ABSTRACT:

Purpose

Intensive therapies in pediatric malignancies increased survival rates but also occurrence of treatment-related morbidities. Therefore, supportive care fulfills an increasingly important role. In planning development of guidelines with incorporation of shared decision making, we noticed that little is known about the needs and preferences of patients and their parents. Our goals were therefore to investigate (1) which supportive care topics patients and parents regard as most important and (2) the preferred role they wish to fulfill in decision making.

Methods

This qualitative study consisted of three focus groups (two traditional, one online) with patients and parents of two Dutch pediatric oncology centers. Data were transcribed as simple verbatim and analyzed usin

SUBMITTER: Tenniglo LJA 

PROVIDER: S-EPMC5577054 | biostudies-literature | 2017 Oct

REPOSITORIES: biostudies-literature