Family caregivers' conceptualisation of quality end-of-life care for people with dementia: A qualitative study.

ABSTRACT:

Background

People with dementia have been described as the 'disadvantaged dying' with poor end-of-life care. Towards the end of life, people with dementia cannot report on the care they receive. It is therefore important to talk to caregivers; however, few have explored the views about end-of-life care from the caregivers' perspective. The majority of research on family caregivers has focussed on the burden and psychological impact of caring for a relative with dementia.

Aim

This study aimed to explore the views of family caregivers about quality end-of-life care for people with dementia.

Design

Qualitative study using in-depth interviews and analysed using thematic analysis.

Setting/participants

Purposive sampling from a third sector organisation's caregiver n

SUBMITTER: Davies N 

PROVIDER: S-EPMC5625846 | biostudies-literature | 2017 Sep

REPOSITORIES: biostudies-literature