The importance of international collaboration for rare diseases research: a European perspective.

ABSTRACT: Over the last two decades, important contributions were made at national, European and international levels to foster collaboration into rare diseases research. The European Union (EU) has put much effort into funding rare diseases research, encouraging national funding organizations to collaborate together in the E-Rare program, setting up European Reference Networks for rare diseases and complex conditions, and initiating the International Rare Diseases Research Consortium (IRDiRC) together with the National Institutes of Health in the USA. Co-ordination of the activities of funding agencies, academic researchers, companies, regulatory bodies, and patient advocacy organizations and partnerships with, for example, the European Research Infrastructures maximizes the collective impact of gl

SUBMITTER: Julkowska D 

PROVIDER: S-EPMC5628265 | biostudies-literature | 2017 Sep

REPOSITORIES: biostudies-literature