The psychosocial impact of leg ulcers in patients with sickle cell disease: I don't want them to know my little secret.

ABSTRACT:

Background

Sickle cell disease (SCD) impacts millions of individuals worldwide and more than 100,000 people in the United States. Leg ulcers are the most common cutaneous manifestation of SCD. The health status of individuals living with chronic leg ulcers is not only influenced by clinical manifestations such as pain duration and intensity, but also by psychosocial factors. Garnering insights into the psychosocial impact can provide a more holistic view of their influence on quality of life.

Methods

Semi-structured interviews were conducted with participants living with active SCD-associated leg ulcers or with a history of ulcers. Subjects were recruited from an ongoing study (INSIGHTS, Clin Trial.Gov NCT02156102) and consented to this qualitative phase of the study. Five a

SUBMITTER: Umeh NI 

PROVIDER: S-EPMC5646800 | biostudies-literature | 2017

REPOSITORIES: biostudies-literature