Improved data validity in the Swedish Register of Palliative Care.

ABSTRACT:

Introduction

The Swedish Register of Palliative Care (SRPC) is a national quality register that collects data about end-of-life care from healthcare providers that care for dying patients. Data are used for quality control and research. Data are mainly collected with an end-of-life questionnaire (ELQ), which is completed by healthcare staff after the death of a patient. A previous validity assessment of the ELQ showed insufficient validity in some items including symptom relief. The aim of this study was to examine the validity of the revised ELQ.

Materials and methods

Data from 100 consecutive patients' medical records at two specialised palliative care units were used to complete new ELQs, which were then compared to the ELQ registrations from the SRPC for the same patient

SUBMITTER: Martinsson L 

PROVIDER: S-EPMC5648220 | biostudies-literature | 2017

REPOSITORIES: biostudies-literature