Use of the National Heart, Lung, and Blood Institute Data Repository.

ABSTRACT:

Background

Research on data sharing from clinical trials has focused on elucidating perceptions, barriers, and attitudes among trialists and study participants with respect to sharing data. However, little information exists regarding utilization or associated publication of articles once clinical trial data have been widely shared.

Methods

We analyzed administrative records of investigator requests for data access, linked publications, and bibliometrics to describe the use of the National Heart, Lung, and Blood Institute data repository.

Results

From January 2000 through May 2016, a total of 370 investigators requested data from 1 or more clinical trials. Requests for trial data have been increasing, with 195 investigators (53%) initiating requests during the last 4.

SUBMITTER: Coady SA 

PROVIDER: S-EPMC5665376 | biostudies-literature | 2017 May

REPOSITORIES: biostudies-literature