Preferences for prenatal diagnosis of sickle-cell disorder: A discrete choice experiment comparing potential service users and health-care providers.

ABSTRACT:

Background

Non-invasive prenatal diagnosis (NIPD) for sickle-cell disorder (SCD) is moving closer to implementation and studies considering stakeholder preferences are required to underpin strategies for offering NIPD in clinical practice.

Objective

Determine service user and provider preferences for key attributes of prenatal diagnostic tests for SCD and examine views on NIPD.

Method

A questionnaire that includes a discrete choice experiment was used to determine the preferences of service users and providers for prenatal tests that varied across three attributes: accuracy, time of test and risk of miscarriage.

Results

Adults who were carriers of SCD or affected with the condition (N=67) were recruited from haemoglobinopathy clinics at two maternity units. Hea

SUBMITTER: Hill M 

PROVIDER: S-EPMC5689222 | biostudies-literature | 2017 Dec

REPOSITORIES: biostudies-literature