Centralized patient-reported outcome data collection in transplantation is feasible and clinically meaningful.

ABSTRACT:

Background

Allogeneic hematopoietic cell transplantation (HCT) cures many patients, but often with the risk of late effects and impaired quality of life. The value of quantifying patient-reported outcomes (PROs) is increasingly being recognized, but the routine collection of PROs is uncommon. This study evaluated the feasibility of prospective PRO collection by an outcome registry at multiple time points from unselected HCT patients undergoing transplantation at centers contributing clinical data to the Center for International Blood and Marrow Transplant Research (CIBMTR), and then it correlated the PRO data with clinical and demographic data.

Methods

The Functional Assessment of Cancer Therapy-Bone Marrow Transplant (FACT-BMT), 36-Item Short Form Health Survey (SF-36), and

SUBMITTER: Shaw BE 

PROVIDER: S-EPMC5693638 | biostudies-literature | 2017 Dec

REPOSITORIES: biostudies-literature