Involvement of people with dementia in making decisions about their lives: a qualitative study that appraises shared decision-making concerning daycare.

ABSTRACT:

Objective

To explore how people with dementia, their informal caregivers and their professionals participate in decision making about daycare and to develop a typology of participation trajectories.

Design

A qualitative study with a prospective, multiperspective design, based on 244 semistructured interviews, conducted during three interview rounds over the course of a year. Analysis was by means of content analysis and typology construction.

Setting

Community settings and nursing homes in the Netherlands.

Participants

19 people with dementia, 36 of their informal caregivers and 38 of their professionals (including nurses, daycare employees and case managers).

Results

The participants' responses related to three critical points in the decision-making tra

SUBMITTER: Groen-van de Ven L 

PROVIDER: S-EPMC5695519 | biostudies-literature | 2017 Nov

REPOSITORIES: biostudies-literature