Decisions around Long-term Ventilation for Children. Perspectives of Directors of Pediatric Home Ventilation Programs.

ABSTRACT:

Rationale

The decision of whether to initiate or forgo long-term ventilation (LTV) for children with life-limiting conditions can be complex and impactful. Providers are responsible for helping families to understand the consequences of their options and guiding them through shared decision-making, but little has been published on how to do this.

Objectives

To assess how directors of pediatric home ventilation programs facilitate shared decision-making with families facing decisions of whether to initiate or forgo LTV for their children with life-limiting conditions. In addition, to assess directors' perspectives on these families' decisional needs.

Methods

Purposeful recruiting of directors/codirectors of pediatric home ventilation programs at children's hospitals wa

SUBMITTER: Edwards JD 

PROVIDER: S-EPMC5718568 | biostudies-literature | 2017 Oct

REPOSITORIES: biostudies-literature