Understanding Ethical Issues of Research Participation From the Perspective of Participating Children and Adolescents: A Systematic Review.

ABSTRACT:

Background

The past 20 years have seen distinct shifts in the way the participation of children and adolescents in research is viewed. This has been emphasized by the growing pediatric research enterprise. Additional information on children's and adolescents' experiences during research participation is needed to better inform researchers on the ethical conduct of research with this vulnerable population.

Aims

The objective of this analysis was to examine ethical issues in research with children and adolescents from their perspective as participants, including: assent, parental consent, risk perception, impact of research participation, and incentives.

Methods

This systematic review was conducted per the Long, Godfrey, Randall, Brettle, and Grant framework by means of

SUBMITTER: Crane S 

PROVIDER: S-EPMC5724520 | biostudies-literature | 2017 Jun

REPOSITORIES: biostudies-literature