Development and Usability Evaluation of an Art and Narrative-Based Knowledge Translation Tool for Parents With a Child With Pediatric Chronic Pain: Multi-Method Study.

ABSTRACT:

Background

Chronic pain in childhood is increasingly being recognized as a significant clinical problem for children and their families. Previous research has identified that families want information about the causes of their child's chronic pain, treatment options, and effective strategies to help their child cope with the pain. Unfortunately, parents have reported that finding this information can be challenging.

Objective

The aim of this study was to actively work together with children attending a pediatric chronic pain clinic and their parents to develop, refine, and evaluate the usability of an art and narrative-based electronic book (e-book) for pediatric chronic pain.

Methods

A multiphase, multi-method research design employing patient engagement techniques w

SUBMITTER: Reid K 

PROVIDER: S-EPMC5746621 | biostudies-literature | 2017 Dec

REPOSITORIES: biostudies-literature