Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation.

ABSTRACT:

Background

Health Related Quality of Life (HR-QoL) Patient reported outcome measures (PROMs) have high utility in evaluation of new interventions in genodermatoses, however inconsistent standards of development and validation have hampered widespread acceptance and adoption.

Objectives

To identify all published HR-QoL PROMs in genodermatoses and critically evaluate their development and measurement properties.

Methods

This systematic review was registered with PROSPERO (CRD42016053301). Ovid Medline, Embase and PsycINFO databases were utilised for literature review using predefined inclusion and exclusion criteria. PROM development was assessed using the COSMIN Checklist and measurement properties were assessed against quality criteria for measurement properties of he

SUBMITTER: Frew JW 

PROVIDER: S-EPMC5747090 | biostudies-literature | 2017 Dec

REPOSITORIES: biostudies-literature