An empirically based conceptual framework for fostering meaningful patient engagement in research.

ABSTRACT:

Background

Patient engagement in research (PEIR) is promoted to improve the relevance and quality of health research, but has little conceptualization derived from empirical data.

Objective

To address this issue, we sought to develop an empirically based conceptual framework for meaningful PEIR founded on a patient perspective.

Methods

We conducted a qualitative secondary analysis of in-depth interviews with 18 patient research partners from a research centre-affiliated patient advisory board. Data analysis involved three phases: identifying the themes, developing a framework and confirming the framework. We coded and organized the data, and abstracted, illustrated, described and explored the emergent themes using thematic analysis. Directed content analysis was condu

SUBMITTER: Hamilton CB 

PROVIDER: S-EPMC5750689 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature