Talking to the people that really matter about their participation in pandemic clinical research: A qualitative study in four European countries.

ABSTRACT:

Background

Pandemics of new and emerging infectious diseases are unpredictable, recurrent events that rapidly threaten global health and security. We aimed to identify public views regarding provision of information and consent to participate in primary and critical care clinical research during a future influenza-like illness pandemic.

Methods

Descriptive-interpretive qualitative study, using focus groups (n = 10) and semi-structured interviews (n = 16), with 80 members of the public (>18 years) in Belgium, Spain, Poland and the UK. Local qualitative researchers followed a scenario-based topic guide to collect data. Data were transcribed verbatim, translated into English and subject to framework analysis.

Results

Public understandings of pandemics were shaped by pers

SUBMITTER: Gobat NH 

PROVIDER: S-EPMC5750735 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature