Improved ethical guidance for the return of results from psychiatric genomics research.

ABSTRACT: There is an emerging consensus that genomic researchers should, at a minimum, offer to return to individual participants clinically valid, medically important and medically actionable genomic findings (for example, pathogenic variants in BRCA1) identified in the course of research. However, this is not a common practice in psychiatric genetics research. Furthermore, psychiatry researchers often generate findings that do not meet all of these criteria, yet there may be ethically compelling arguments to offer selected results. Here, we review the return of results debate in genomics research and propose that, as for genomic studies of other medical conditions, psychiatric genomics researchers should offer findings that meet the minimum criteria stated above. Additionally, if resources allow,

SUBMITTER: Lazaro-Munoz G 

PROVIDER: S-EPMC5752587 | biostudies-literature | 2018 Jan

REPOSITORIES: biostudies-literature