Development and validation of the Patient Experience with Treatment and Self-management (PETS): a patient-reported measure of treatment burden.

ABSTRACT:

Purpose

The purpose of this study was to develop and validate a new comprehensive patient-reported measure of treatment burden-the Patient Experience with Treatment and Self-management (PETS).

Methods

A conceptual framework was used to derive the PETS with items reviewed and cognitively tested with patients. A survey battery, including a pilot version of the PETS, was mailed to 838 multi-morbid patients from two healthcare institutions for validation.

Results

A total of 332 multi-morbid patients returned completed surveys. Diagnostics supported deletion and consolidation of some items and domains. Confirmatory factor analysis supported a domain model for scaling comprised of 9 factors: medical information, medications, medical appointments, monitoring health, interper

SUBMITTER: Eton DT 

PROVIDER: S-EPMC5753596 | biostudies-literature | 2017 Feb

REPOSITORIES: biostudies-literature