Pediatric Heart Transplantation: Transitioning to Adult Care (TRANSIT): Baseline Findings.

ABSTRACT: Young adult solid organ transplant recipients who transfer from pediatric to adult care experience poor outcomes related to decreased adherence to the medical regimen. Our pilot trial for young adults who had heart transplant (HT) who transfer to adult care tests an intervention focused on increasing HT knowledge, self-management and self-advocacy skills, and enhancing support, as compared to usual care. We report baseline findings between groups regarding (1) patient-level outcomes and (2) components of the intervention. From 3/14 to 9/16, 88 subjects enrolled and randomized to intervention (n = 43) or usual care (n = 45) at six pediatric HT centers. Patient self-report questionnaires and medical records data were collected at baseline, and 3 and 6 months after transfer. For this report,

SUBMITTER: Grady KL 

PROVIDER: S-EPMC5799004 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature