Patient engagement with research: European population register study.

ABSTRACT:

Background

Lay involvement in implementation of research evidence into practice may include using research findings to guide individual care, as well as involvement in research processes and policy development. Little is known about the conditions required for such involvement.

Aim

To assess stroke survivors' research awareness, use of research evidence in their own care and readiness to be involved in research processes.

Methods

Cross sectional survey of stroke survivors participating in population-based stroke registers in six European centres.

Results

The response rate was 74% (481/647). Reasons for participation in register research included responding to clinician request (56%) and to 'give something back' (19%); however, 20% were unaware that they were pa

SUBMITTER: McKevitt C 

PROVIDER: S-EPMC5810710 | biostudies-literature | 2015 Dec

REPOSITORIES: biostudies-literature