Crowd-sourced Ontology for Photoleukocoria: Identifying Common Internet Search Terms for a Potentially Important Pediatric Ophthalmic Sign.

ABSTRACT:

Purpose

Leukocoria is the most common presenting sign for pediatric eye disease including retinoblastoma and cataract, with worse outcomes if diagnosis is delayed. We investigated whether individuals could identify leukocoria in photographs (photoleukocoria) and examined their subsequent Internet search behavior.

Methods

Using a web-based questionnaire, in this cross-sectional study we invited adults aged over 18 years to view two photographs of a child with photoleukocoria, and then search the Internet to determine a possible diagnosis and action plan. The most commonly used search terms and websites accessed were recorded.

Results

The questionnaire was completed by 1639 individuals. Facebook advertisement was the most effective recruitment strategy. The mean age of

SUBMITTER: Staffieri SE 

PROVIDER: S-EPMC5815559 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature