Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys.

ABSTRACT:

Background

There are numerous challenges in including patients in a core outcome set (COS) study, these can vary depending on the patient group. This study describes current efforts to include patients in the development of COS, with the aim of identifying areas for further improvement and study.

Methods

Using the COMET database, corresponding authors of COS projects registered or published from 1 January 2013 to 2 February 2017 were invited via a personalised email to participate in a short online survey. The survey and emails were constructed to maximise the response rate by following the academic literature on enhancing survey responses. Personalised reminder emails were sent to non-responders. This survey explored the frequency of patient input in COS studies, who was in

SUBMITTER: Biggane AM 

PROVIDER: S-EPMC5816387 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature