Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis.

ABSTRACT:

Objectives

Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND), is a debilitating terminal condition. Informal caregivers are key figures in ALS care provision. The physical, psychological and emotional impact of providing care in the home requires appropriate assistance and support. The objective of this analysis is to explore the needs of informal ALS caregivers across the caregiving course.

Design

In an open-ended question as part of a semistructured interview, caregivers were asked what would help them in their role. Interviews took place on three occasions at 4-month to 6-month intervals. Demographic, burden and quality of life data were collected, in addition to the open-ended responses. We carried out descriptive statistical analysis and them

SUBMITTER: Galvin M 

PROVIDER: S-EPMC5829772 | biostudies-literature | 2018 Jan

REPOSITORIES: biostudies-literature