Effect of deliberation on the public's attitudes toward consent policies for biobank research.

ABSTRACT: In this study, we evaluate the effect of education and deliberation on the willingness of members of the public to donate tissue to biobank research and on their attitudes regarding various biobank consent policies. Participants were randomly assigned to a democratic deliberation (DD) group, an education group that received only written materials, and a control group. Participants completed a survey before the deliberation and two surveys post-deliberation: one on (or just after) the deliberation day, and one 4 weeks later. Subjects were asked to rate 5 biobank consent policies as acceptable (or not) and to identify the best and worst policies. Analyses compared acceptability of different policy options and changes in attitudes across the three groups. After deliberation, subjects in the D

SUBMITTER: Tomlinson T 

PROVIDER: S-EPMC5838972 | biostudies-literature | 2018 Feb

REPOSITORIES: biostudies-literature