Developing a shared decision support framework for aortic root surgery in Marfan syndrome.

ABSTRACT:

Objective

The study is an early phase of development of a decision support framework for people with Marfan syndrome who are anticipating prophylactic aortic root surgery. Implications of the timing and the nature of the operation chosen were previously elicited in focus groups. In this step, we explored the range of relative values placed by individuals on the implications of decisions made about surgery.

Methods

Following the principles of the Ottawa Decision Support Framework, eight questions in the general form 'How important is it to you …' were framed by a panel. Marfan people, families and specialist doctors answered online. Quantitative and qualitative analyses were performed.

Results

Worldwide, 142 responses were received including 25 specialist doctors. Resp

SUBMITTER: Treasure T 

PROVIDER: S-EPMC5861390 | biostudies-literature | 2018 Mar

REPOSITORIES: biostudies-literature