Selective patient and public involvement: The promise and perils of pharmaceutical intervention for autism.

ABSTRACT:

Background

Guidelines suggest the patient community should be consulted from the outset when designing and implementing basic biomedical research, but such patient communities may include conflicting views. We examined how engagement occurred in one such instance.

Objective

Our objective was to scrutinize patient and public involvement (PPI) by a pan-European biomedical consortium working to develop drugs to treat autism. We aimed to use this as an example to illustrate how PPI has been utilized in biomedical research.

Setting, participants and analysis

Two public events, one in the UK and one in Denmark were conducted as part of the consortium's on-going PPI activities in 2014 and 2015. Sixty-six individuals submitted written comments on the consortium's research aft

SUBMITTER: Russell G 

PROVIDER: S-EPMC5867326 | biostudies-literature | 2018 Apr

REPOSITORIES: biostudies-literature