Multi-source development of an integrated model for family health history.

ABSTRACT:

Objective

To integrate data elements from multiple sources for informing comprehensive and standardized collection of family health history (FHH).

Materials and methods

Three types of sources were analyzed to identify data elements associated with the collection of FHH. First, clinical notes from multiple resources were annotated for FHH information. Second, questions and responses for family members in patient-facing FHH tools were examined. Lastly, elements defined in FHH-related specifications were extracted for several standards development and related organizations. Data elements identified from the notes, tools, and specifications were subsequently combined and compared.

Results

In total, 891 notes from three resources, eight tools, and seven specifications asso

SUBMITTER: Chen ES 

PROVIDER: S-EPMC5901119 | biostudies-literature | 2015 Apr

REPOSITORIES: biostudies-literature