Taking patient and public involvement online: qualitative evaluation of an online forum for palliative care and rehabilitation research.

ABSTRACT:

Plain english summary

Patient and public involvement (PPI) is increasingly recognised as important in research. Most PPI takes place face-to-face, but this can be difficult for people who are unwell or have caring responsibilities. As these challenges are particularly common in palliative care and rehabilitation research, we developed an online forum for PPI: www.csipublicinvolvement.co.uk. In this study, we explored how well the online forum worked, if it is a suitable method for PPI, and how PPI members and researchers reacted to using it. We used an existing theory about online interventions to help choose the 'right' questions to ask participants. We invited PPI members and researchers who had used the online forum to participate in focus groups, and identified the most importa

SUBMITTER: Brighton LJ 

PROVIDER: S-EPMC5928583 | biostudies-literature | 2018

REPOSITORIES: biostudies-literature