Exploring the quality of life issues in people with retinal diseases: a qualitative study.

ABSTRACT:

Background

The lack of an appropriate retina-specific patient-reported outcome instrument restricts the understanding of the full impact of hereditary retinal diseases and other less common but potentially blinding acquired retinal diseases such as, vascular occlusions, epiretinal membrane, macular hole, central serous retinopathy and other vitreoretinopathies on quality of life. This study aims to explore the quality of life issues in people with hereditary retinal diseases and acquired retinal diseases to develop disease-specific patient-reported outcome instruments.

Methods

A qualitative research methodology to understand the lived experiences of people with retinal diseases was carried out. Data were collected through semistructured interviews. The coding, aggregation an

SUBMITTER: Prem Senthil M 

PROVIDER: S-EPMC5934910 | biostudies-literature | 2017

REPOSITORIES: biostudies-literature