Patient experiences of receiving a diagnosis of Parkinson's disease.

ABSTRACT:

Objective

To report patients' own experiences of receiving a diagnosis of Parkinson's disease (PD) and to identify factors influencing this experience.

Methods

A survey by the European Parkinson's Disease Association in 11 European countries.

Results

1775 patients with an average age of 69.7 years participated of whom 54% were male. Those living in rural areas reported having waited longer to seek medical help (p < 0.05). A possible diagnosis of PD was made at the first appointment in a third of respondents. When the diagnosis was made, only 50% reported that the diagnosis was communicated sensitively. 38% of patients reported having been given enough time to ask questions and discuss concerns, but 29% did not. 98% of participants reported having been given informatio

SUBMITTER: Schrag A 

PROVIDER: S-EPMC5937885 | biostudies-literature | 2018 May

REPOSITORIES: biostudies-literature