EpiNet as a way of involving more physicians and patients in epilepsy research: Validation study and accreditation process.

ABSTRACT:

Objective

EpiNet was established to encourage epilepsy research. EpiNet is used for multicenter cohort studies and investigator-led trials. Physicians must be accredited to recruit patients into trials. Here, we describe the accreditation process for the EpiNet-First trials.

Methods

Physicians with an interest in epilepsy were invited to assess 30 case scenarios to determine the following: whether patients have epilepsy; the nature of the seizures (generalized, focal); and the etiology. Information was presented in two steps for 23 cases. The EpiNet steering committee determined that 21 cases had epilepsy. The steering committee determined by consensus which responses were acceptable for each case. We chose a subset of 18 cases to accredit investigators for the EpiNet-First

SUBMITTER: Bergin PS 

PROVIDER: S-EPMC5939455 | biostudies-literature | 2017 Mar

REPOSITORIES: biostudies-literature