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Dataset Information

Clinical providers' experiences with returning results from genomic sequencing: an interview study.


ABSTRACT:

Background

Current medical practice includes the application of genomic sequencing (GS) in clinical and research settings. Despite expanded use of this technology, the process of disclosure of genomic results to patients and research participants has not been thoroughly examined and there are no established best practices.

Methods

We conducted semi-structured interviews with 21 genetic and non-genetic clinicians returning results of GS as part of the NIH funded Clinical Sequencing Exploratory Research (CSER) Consortium projects. Interviews focused on the logistics of sessions, participant/patient reactions and factors influencing them, how the sessions changed with experience, and resources and training recommended to return genomic results.

Results

The length of prep

SUBMITTER: Wynn J 

PROVIDER: S-EPMC5941324 | biostudies-literature | 2018 May

REPOSITORIES: biostudies-literature