Dataset Information

Management and Family Burdens Endorsed by Parents of Youth <7 Years Old With Type 1 Diabetes.

ABSTRACT:

Background

This study investigated unique burdens experienced by parents of young children with type 1 diabetes in the context of contemporary diabetes management.

Methods

Self-report surveys and medical record information from the T1D Exchange clinic registry were used. Parental burden and family impact scores were tabulated across demographic and clinical characteristics, overall and according to age group (<4, 4-<6, and 6-<7 years).

Results

The mean age of the 597 children was 5.2 ± 1.2 years (n = 111 <4 years, n = 291 4-<6 years, and n = 195 6-<7 years) and mean duration of diabetes was 2.4 ± 1.1 years. Mean hemoglobin A1c was 8.2% ± 1.1%. Approximately one-third (31%) reported their child was currently using CGM and over half (58%) reported using insulin pumps. The most frequently endorsed parent-reported burdens of diabetes were worrying about child having a low blood sugar (74%), about the future and possibility of serious complications (70%), and feeling upset when their child's diabetes management is "off track" (61%). Areas endorsed for negative family impact were diminished amount or quality of sleep for family members (59%) and need for flexible working arrangements to help care for their child (55%).

Conclusions

Substantial burdens remain for parents of young children with type 1 diabetes, despite the availability of advanced technologies for diabetes management.

SUBMITTER: Harrington KR

PROVIDER: S-EPMC5951003 | biostudies-literature | 2017 Sep

REPOSITORIES: biostudies-literature

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Publications

Management and Family Burdens Endorsed by Parents of Youth <7 Years Old With Type 1 Diabetes.

Harrington Kara R KR Boyle Claire T CT Miller Kellee M KM Hilliard Marisa E ME Anderson Barbara J BJ Van Name Michelle M DiMeglio Linda A LA Laffel Lori M LM

Journal of diabetes science and technology 20170803 5

<h4>Background</h4>This study investigated unique burdens experienced by parents of young children with type 1 diabetes in the context of contemporary diabetes management.<h4>Methods</h4>Self-report surveys and medical record information from the T1D Exchange clinic registry were used. Parental burden and family impact scores were tabulated across demographic and clinical characteristics, overall and according to age group (<4, 4-<6, and 6-<7 years).<h4>Results</h4>The mean age of the 597 childr ...[more]

PMID: 28770627

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Project description:Objective: To evaluate the insulin-only configuration of the iLet® bionic pancreas (BP) in youth 6-17 years old with type 1 diabetes (T1D). Research Design and Methods: In this multicenter, randomized, controlled trial, 165 youth with T1D (6-17 years old; baseline HbA1c 5.8%-12.2%; 35% using multiple daily injections, 36% using an insulin pump without automation, 4% using an insulin pump with low glucose suspend, and 25% using a hybrid closed-loop system before the study) were randomly assigned 2:1 to use BP (n = 112) with insulin aspart or insulin lispro (BP group) or to a control group (n = 53) using their personal standard care insulin delivery (SC group) plus real-time continuous glucose monitoring (CGM). The primary outcome was HbA1c at 13 weeks. Results: Mean HbA1c decreased from 8.1% ± 1.2% at baseline to 7.5% ± 0.7% at 13 weeks with BP versus 7.8% ± 1.1% at both baseline and 13 weeks with SC (adjusted difference = -0.5%, 95% CI -0.7% to -0.2%, P < 0.001). Participants with baseline HbA1c ≥9.0% (n = 34) decreased mean HbA1c from 9.7% ± 0.8% to 7.9% ± 0.6% after 13 weeks with BP compared with 9.7% ± 0.5% to 9.8% ± 0.8% with SC. Over 13 weeks, mean time in range (TIR) 70-180 mg/dL increased by 10% (2.4 h per day) and mean CGM glucose was reduced by 15 mg/dL with BP compared with SC (P < 0.001). Analyses of time >180 mg/dL, time >250 mg/dL, and standard deviation of CGM glucose favored BP (P < 0.001). Time <54 mg/dL was low at baseline (median 0.2%) and not significantly different between groups over 13 weeks (P = 0.24). A severe hypoglycemia event occurred in 3 (2.7%) participants in the BP group and in 1 (1.9%) in the SC group. Conclusions: In youth 6-17 years old with T1D, use of insulin-only configuration of BP improved HbA1c, TIR, and hyperglycemic metrics without increasing CGM-measured hypoglycemia compared with standard of care. Improvement in glycemic metrics was most pronounced in participants with high baseline HbA1c levels. Clinical Trial Registry: clinicaltrials.gov; NCT04200313.

Dataset Information

Management and Family Burdens Endorsed by Parents of Youth <7 Years Old With Type 1 Diabetes.

Background

Methods

Results

Conclusions

Publications

Management and Family Burdens Endorsed by Parents of Youth <7 Years Old With Type 1 Diabetes.

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