A patient decision aid for risk-reducing surgery in premenopausal BRCA1/2 mutation carriers: Development process and pilot testing.

ABSTRACT:

Background

BRCA1/2 mutation carriers' choice between risk-reducing salpingo-oophorectomy (RRSO) and salpingectomy with delayed oophorectomy is very complex. Aim was to develop a patient decision aid that combines evidence with patient preferences to facilitate decision making.

Design

Systematic development of a patient decision aid in an iterative process of prototype development, alpha testing by patients and clinicians and revisions using International Patient Decision Aid Standards (IPDAS) quality criteria. Information was based on the available literature and current guidelines. A multidisciplinary steering group supervised the process.

Setting and participants

Pre-menopausal BRCA1/2 mutation carriers choosing between RRSO and salpingectomy with delayed oophorecto

SUBMITTER: Harmsen MG 

PROVIDER: S-EPMC5980589 | biostudies-literature | 2018 Jun

REPOSITORIES: biostudies-literature