Perceptions of and decision making about clinical trials in adolescent and young adults with Cancer: a qualitative analysis.

ABSTRACT:

Background

Adolescent and young adults (AYA) enrolment rates into cancer clinical trials (CCT) are the lowest of any age group globally. As AYA have distinct biological, psychosocial and relational needs, we aimed to explore any unique factors influencing their CCT decision-making process, including AYA-specific perceptions or attitudes towards CCT.

Methods

Qualitative interpretive descriptive methodology was used to explore AYA perceptions and decision-making related to CCT. An analytic approach conducive to inductive imagining and exploratory questioning was used in order to generate insights and interpret data.

Results

A total of 21 AYA were interviewed (median age: 31 (18-39)). Twelve (57%) participants had previously been approached to participate in CCT. Major t

SUBMITTER: Bell JAH 

PROVIDER: S-EPMC5987432 | biostudies-literature | 2018 Jun

REPOSITORIES: biostudies-literature