A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation.

ABSTRACT: OBJECTIVE:First, to compare QOL and illness perceptions between patients with a Fontan circulation and patients with anatomically simple defects (ie, atrial septal defects [ASD] or ventricular septal defects [VSD]). Second, to explore illness perceptions as a mediator of the association between congenital heart disease (CHD) diagnosis and QOL. DESIGN:Cross-sectional observational study. SETTING:Twenty-four cardiology centers from 15 countries across five continents. PATIENTS:Four hundred thirty-five adult patients with congenital heart disease (177 Fontan and 258 ASD/VSD) ages 18-83 years. OUTCOME MEASURES:QOL and illness perceptions were assessed by the Satisfaction With Life Scale and the Brief Illness Perceptions Questionnaire, respectively. RESULTS:Patients with a Fontan circulation re

SUBMITTER: Holbein CE 

PROVIDER: S-EPMC5993574 | biostudies-literature | 2018 May

REPOSITORIES: biostudies-literature