Patient Perception of Disease-Related Symptoms and Complications in Relapsing Polychondritis.

ABSTRACT:

Objective

To assess patient-reported symptoms and burden of disease in relapsing polychondritis (RP).

Methods

Patients with RP completed a disease-specific online survey to identify symptoms attributed to illness. Patients were divided into subgroups based upon presence or absence of ear/nose, airway, or joint involvement. Pathway to diagnosis, treatment, and disease-related complications were assessed within each subgroup.

Results

Data from 304 respondents were included in this analysis. Prior to diagnosis, most patients with RP went to the emergency room (54%), saw > 3 physicians (54%), and had symptoms for >5 years (64%). A concomitant diagnosis of fibromyalgia and absence of ear/nose or joint involvement was associated with diagnostic delay >1 year. Common diagnos

SUBMITTER: Ferrada MA 

PROVIDER: S-EPMC6003821 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature