Creation of Experience-based Celiac Benchmarks: The First Step in Pretransition Self-management Assessment.

ABSTRACT: OBJECTIVES:Transition planning for children with chronic disease includes the development of independence in many self-management tasks. Conditions that depend on diet have distinct skill sets not well assessed by the traditional transition-readiness tools. There has been literature that describes age-appropriate skill acquisition for diabetes and food allergy patients. There are, however, no age-appropriate benchmarks established for celiac disease (CD). METHODS:CD experts (including physician, nurse, dietician, social worker, patient, and parent) created a list of celiac-related tasks, which formed the basis of the survey. Patients with CD, and their parents, were recruited from outpatient celiac clinic and support groups, and invited to report the age each task was mastered. RESULTS:Res

SUBMITTER: Fishman LN 

PROVIDER: S-EPMC6014871 | biostudies-literature | 2018 Jul

REPOSITORIES: biostudies-literature