Specifying sickle cell disease interventions: a study protocol of the Sickle Cell Disease Implementation Consortium (SCDIC).

ABSTRACT:

Background

Sickle cell disease (SCD) is an inherited blood disorder that results in a lifetime of anemia, severe pain, and end-organ damage that can lead to premature mortality. While the SCD field has made major medical advances, much needs to be done to improve the quality of care for people with SCD. This study capitalizes on the Sickle Cell Disease Implementation Consortium (SCDIC), a consortium of eight academic sites aiming to test implementation strategies that could lead to more accelerated application of the NHLBI guidelines for treating SCD. This report documents the process to support the consortium by specifying the interventions being developed.

Methods

This study consists of three steps. The Principal Investigator of each site and two site representatives who a

SUBMITTER: Baumann AA 

PROVIDER: S-EPMC6020469 | biostudies-literature | 2018 Jun

REPOSITORIES: biostudies-literature