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Dataset Information

Understanding of multigene test results among males undergoing germline testing for inherited prostate cancer: Implications for genetic counseling.


ABSTRACT:

Background

Genetic testing (GT) for prostate cancer (PCA) is rising, with limited insights regarding genetic counseling (GC) needs of males. Genetic Evaluation of Men (GEM) is a prospective multigene testing study for inherited PCA. Men undergoing GC were surveyed on knowledge of cancer risk and genetics (CRG) and understanding of personal GT results to identify GC needs.

Methods

GEM participants with or high-risk for PCA were recruited. Pre-test GC was in-person, with video and handout, or via telehealth. Post-test disclosure was in-person, by phone, or via telehealth. Clinical and family history data were obtained from participant surveys and medical records. Participants completed measures of knowledge of CRG, literacy, and numeracy pre-test and post-test. Understanding o

SUBMITTER: Giri VN 

PROVIDER: S-EPMC6047906 | biostudies-literature | 2018 Sep

REPOSITORIES: biostudies-literature