Psychometric Evaluation of the Caregiver Burden Inventory in Children and Adolescents With PANS.

ABSTRACT: Objectives:To establish the psychometric properties of the Caregiver Burden Inventory (CBI) in patients with Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), which is characterized by the abrupt onset of obsessive-compulsive disorder and/or restricted eating and at least two additional psychiatric symptoms. Parents of patients with PANS have reported high caregiver burden. However, no validated instrument of burden exists for this population. Methods:Study took place at a community-based PANS clinic where the CBI is administered as part of routine clinical care. The first CBI available during an active disease flare was analyzed (N =104). Construct validity was evaluated within a confirmatory factor analytic framework. Associations between the CBI and patient/family characteristics

SUBMITTER: Farmer C 

PROVIDER: S-EPMC6054236 | biostudies-literature | 2018 Aug

REPOSITORIES: biostudies-literature